World Sickle Cell Awareness Day

Every year on June 19, the global community observes World Sickle Cell Awareness Day, a day dedicated to increasing public knowledge and understanding of sickle cell disease (SCD) and the challenges faced by patients, their families, and caregivers.

History of World Sickle Cell Awareness Day

World Sickle Cell Awareness Day was established by the United Nations General Assembly in 2008, recognizing sickle cell disease as a public health problem and one of the world’s foremost genetic diseases. The first observance took place on June 19, 2009. ¹

The initiative to recognize SCD on a global scale was driven by advocacy from various organizations and individuals, including the Sickle Cell Disease International Organization (SCDIO) and support from countries like the Republic of Congo and Senegal. Their efforts highlighted the need for increased awareness, research, and resources to combat the disease. ²

Why is World Sickle Cell Awareness Day important?

Sickle cell disease is a group of inherited red blood cell disorders that affect millions of people worldwide. The disease causes red blood cells to become hard and sticky, taking on a C-shape, which can block blood flow and lead to pain and other serious complications.

Observing World Sickle Cell Awareness Day is crucial for highlighting the challenges faced by those living with SCD, including limited access to comprehensive care, stigma, and the need for more research and better treatment options. It also serves as a platform to advocate for policies that support affected individuals and to promote early diagnosis and preventive measures.

• Raises awareness about the impact of sickle cell disease
• Encourages early diagnosis and preventive care
• Highlights the need for better treatment options
• Supports advocacy for affected individuals and families
• Promotes global efforts to combat the disease

How to Observe World Sickle Cell Awareness Day

There are various ways to participate in World Sickle Cell Awareness Day. Individuals and organizations can host educational events, share information on social media, or participate in community activities to raise awareness.

Wearing red, the color associated with sickle cell awareness, and sharing personal stories can also help bring attention to the cause. Donating to organizations that support SCD research and patient care is another meaningful way to contribute.

• Host or attend educational events about sickle cell disease
• Share information and personal stories on social media
• Wear red to show support and raise awareness
• Donate to organizations supporting SCD research and care
• Advocate for policies that benefit individuals with SCD

World Sickle Cell Awareness Day Dates Table

1. https://www.sc101.org/sicklepedia/world-sickle-cell-day/[↩]
2. https://www.aabb.org/news-resources/news/article/2024/06/14/world-sickle-cell-awareness-day–transforming-sickle-cell-care-in-the-u.s.-and-beyond[↩]