Paddle for Perthes Disease Awareness Day

Paddle for Perthes Disease Awareness Day is observed annually on the last Saturday in July. In 2026, this date falls on July 25. This day raises awareness about Legg–Calvé–Perthes disease, a childhood hip disorder that disrupts blood flow to the femoral head, causing bone death and joint deformity. The event encourages people to paddle—whether by kayak, canoe, or stand-up paddleboard—as a symbol of movement and support for affected children worldwide.

History of Paddle for Perthes Disease Awareness Day

Perthes disease was first described in 1897 by physician Karel Maydl, and in 1909 Henning Waldenström mistakenly attributed it to tuberculosis. In 1910, three independent doctors—Arthur Legg, Jacques Calvé, and Georg Perthes—correctly identified the disease as unrelated to tuberculosis, leading to its modern name. The condition affects roughly 5.5 out of 100,000 children each year, with boys affected three to five times more often than girls. Most cases occur between ages 4 and 10, and the disease rarely appears after age 14.

The first Paddle for Perthes Disease Awareness Day event was announced via Twitter and Facebook in 2010, even though no formal gatherings took place. The day was later established as an annual observance on the last Saturday in July, aiming to bring global attention to the disease. In the United Kingdom, a nationwide study began in 2016 to collect data on every new case of Perthes disease, funded by the National Institute for Health Research and the Alder Hey Charity. This study aims to improve understanding and treatment of the condition.

Why is Paddle for Perthes Disease Awareness Day important?

This day offers a focused opportunity to raise awareness about a rare but impactful childhood hip disorder. Many people have never heard of Perthes disease, and the event helps educate the public about its symptoms, treatment options, and the challenges faced by children and families. By sharing information through social media, local events, and fundraising campaigns, the day can change attitudes and reduce stigma around hidden disabilities.

Fundraising efforts during the day directly support research, therapy, and family resources. Organizations like the Perthes Kids Foundation (founded in 2011) and the International Perthes Study Group coordinate events to fund studies and provide education. The day also encourages community involvement, from local paddling events to online donation drives, all of which can improve outcomes for children with Perthes disease.

• Join a Perthes Disease fundraising event to raise money for therapies, mental health support, and research.
• Create awareness by sharing facts about Perthes disease on social media, podcasts, or news outlets.
• Visit patients in the hospital to show compassion and support for those undergoing treatment.
• Organize a local paddle event with friends, family, or community groups to symbolize movement and solidarity.
• Donate to reputable foundations such as the Perthes Kids Foundation or the International Perthes Study Group.

How to Observe Paddle for Perthes Disease Awareness Day

Participating in the day can be as simple as posting a fact about Perthes disease on social media using the hashtag #PaddleForPerthesDiseaseAwarenessDay. Many people choose to go for a paddle—whether on a lake, river, or ocean—to physically represent the day’s theme. If you own a kayak or paddleboard, consider inviting others to join and share photos online. Local watersports retailers may offer discounts on adaptive equipment, and physical therapy clinics might provide free consultations about hip health.

For those who cannot paddle, virtual participation is equally valuable. You can donate to research foundations, attend online educational webinars, or simply talk to friends and family about the condition. Every action helps spread awareness and supports children living with Perthes disease. The goal is to ensure that no child feels alone in their journey and that the public understands the importance of early diagnosis and treatment.

• Paddle on a local waterway and post a photo with the event hashtag.
• Host a virtual fundraiser for Perthes research through a platform like Facebook or GoFundMe.
• Share infographics or personal stories about Perthes disease on your social media channels.
• Contact your local news outlet to run a story about the day and the condition.
• Wear blue (the awareness color for Perthes) and explain why when asked.

Paddle for Perthes Disease Awareness Day Dates